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elizabeth ansell

I'm Tired of ME/CFS Being Misunderstood

I’m using my voice to advocate for myself and the millions of people living with myalgic encephalomyelitis/chronic fatigue syndrome

Marcie Westwater

Stress Caused My Spontaneous Coronary Artery Dissection

I thought I was healthy, but everyday stress was damaging my heart

Kelly McWhinney

I Thought I Was Too Young to Get Melanoma

I was 26 when I found the first spot. Then it came back.

 Amy Beltzer

Doctors Dismissed My Breathing Issues — But It Was Eosinophilic Esophagitis (EoE)

When a GI finally took my symptoms seriously, I was diagnosed with a chronic esophagus disorder

 Amy Beltzer

Doctores ignoraron mis dificultades para respirar, pero era esofagitis eosinofílica (EEo)

Cuando una gastroenteróloga finalmente consideró mis síntomas seriamente, me diagnosticaron un trastorno esofágico crónico

Heather Silvestri

Cuando le diagnosticaron EEo a mi hijo, el mundo de nuestra familia se puso de cabeza.

Un equipo médico solidario es crucial, al igual que un buen sentido del humor

Jess Graham

I Didn’t Know Having a Baby Increases Your Risk for Stroke

I didn’t have the classic signs of a stroke, so I blamed my symptoms on being a new mom

Demeshia Montgomery

I Thought It Was Covid, but It Was COPD

I’m devoted to advocacy work and hope more people with COPD will reach out for support

Demeshia Montgomery

Pensé que tenía covid, pero en realidad tenía EPOC

Estoy comprometida con mi trabajo de concientización y espero que más personas con EPOC pidan asistencia

Shamekka Marty

I Lived with Undiagnosed Lupus for Years — Because Doctors Refused to Test Me for It

They didn’t take me seriously until the disease had all but destroyed me

amanda

I Taught People How Not to Get Herpes. Then I Got Herpes.

After the initial shock and shame, I gained a new perspective

Tracy at the Lupus Foundation of America’s Walk to End Lupus Now

I Still Live a Full and Active Life with Lupus

My days may look a bit different than I imagined, but my life is filled with joy and purpose

Tracy en la Walk to End Lupus Now [Caminata para eliminar el lupus ahora] de Lupus Foundation of America

Todavía disfruto una vida activa y plena con lupus

Mis días pueden ser un poco diferentes de lo que imaginé, pero mi vida está llena de alegría y propósito

Kay Kays

I Was Told No One Lives with Pancreatic Cancer, but 31 Years Later, I’m Still Here — Fighting for a Cure

As the first survivor patient research advocate in the U.S., I’ve dedicated my life to raising awareness and advancing treatment options for pancreatic cancer

Lindsey Peters

My Doctor Told Me to Go Get Pregnant to Treat My Endometriosis

After endometriosis surgery didn’t work, I was told to get pregnant or have a hysterectomy to help stop the pain

Sabrina Riddle

My Ear Infection Turned Out to Be a Rare Disease

I was treated for an ear infection — then cancer — before I was finally diagnosed with a rare disease called IgG4-RD

Shannon Boxx

I Won Three Olympic Gold Medals All While Keeping My Sjögren’s Disease a Secret from the Sports World

Now my goal is to tell as many people as I can to raise awareness about Sjögren’s disease

Abby Hunt-Metzbower

Having a Rare Disease Called PBC Taught Me to Speak Up

I spent years just waiting for a treatment — now, I’m advocating for one

Abby Hunt-Metzbower

Tener una enfermedad infrecuente llamada CBP me enseñó a decir lo que siento

Pasé años esperando que se desarrolle algún tratamiento. Ahora, abogo por uno

Bellamy Young

I Missed All the Signs of My Dad’s Liver Disease

My family wasn’t told the signs of hepatic encephalopathy until it was too late. Now, I’m raising awareness about the disease and helping other caregivers share their stories.

Tricia Marciel

It Wasn’t Stage Fright. I Was Having a Heart Attack at Age 39.

Like many people, I thought I was too young to have a heart attack — but it can happen to anyone

Karen North, R.N., BSN

I Was Still Healing from a Double Mastectomy When I Was Diagnosed with Cervical Cancer

Having two cancers back-to-back tested my mental and physical strength, but now I lead a survivor group for the LGBTQIA+ community