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Being Outed Was Traumatic, But It Pushed Me To Accept — and Embrace — My Sexuality
Once I was free of my secret, life opened up for me in powerful ways
For Years, I Had No Idea My Epic Migraine Attacks Were Tied to My Menstrual Cycle
A supportive OB-GYN finally got me the treatment I needed
Pasé años sin tener idea que mis episodios épicos de migrañas estaban relacionados con mi ciclo menstrual
Una ginecóloga obstetra sensible finalmente me dio el tratamiento que necesitaba
I'm Tired of ME/CFS Being Misunderstood
I’m using my voice to advocate for myself and the millions of people living with myalgic encephalomyelitis/chronic fatigue syndrome
Stress Caused My Spontaneous Coronary Artery Dissection
I thought I was healthy, but everyday stress was damaging my heart
I Thought I Was Too Young to Get Melanoma
I was 26 when I found the first spot. Then it came back.
Doctors Dismissed My Breathing Issues — But It Was Eosinophilic Esophagitis (EoE)
When a GI finally took my symptoms seriously, I was diagnosed with a chronic esophagus disorder
Doctores ignoraron mis dificultades para respirar, pero era esofagitis eosinofílica (EEo)
Cuando una gastroenteróloga finalmente consideró mis síntomas seriamente, me diagnosticaron un trastorno esofágico crónico
When My Son Was Diagnosed With EoE, Our Family’s World Was Turned Upside Down
A supportive medical team is crucial — as is a sense of humor
Cuando le diagnosticaron EEo a mi hijo, el mundo de nuestra familia se puso de cabeza.
Un equipo médico solidario es crucial, al igual que un buen sentido del humor
I Didn’t Know Having a Baby Increases Your Risk for Stroke
I didn’t have the classic signs of a stroke, so I blamed my symptoms on being a new mom
I Thought It Was Covid, but It Was COPD
I’m devoted to advocacy work and hope more people with COPD will reach out for support
Pensé que tenía covid, pero en realidad tenía EPOC
Estoy comprometida con mi trabajo de concientización y espero que más personas con EPOC pidan asistencia
I Lived with Undiagnosed Lupus for Years — Because Doctors Refused to Test Me for It
They didn’t take me seriously until the disease had all but destroyed me
I Taught People How Not to Get Herpes. Then I Got Herpes.
After the initial shock and shame, I gained a new perspective
I Still Live a Full and Active Life with Lupus
My days may look a bit different than I imagined, but my life is filled with joy and purpose
Todavía disfruto una vida activa y plena con lupus
Mis días pueden ser un poco diferentes de lo que imaginé, pero mi vida está llena de alegría y propósito
I Was Told No One Lives with Pancreatic Cancer, but 31 Years Later, I’m Still Here — Fighting for a Cure
As the first survivor patient research advocate in the U.S., I’ve dedicated my life to raising awareness and advancing treatment options for pancreatic cancer
My Doctor Told Me to Go Get Pregnant to Treat My Endometriosis
After endometriosis surgery didn’t work, I was told to get pregnant or have a hysterectomy to help stop the pain
My Ear Infection Turned Out to Be a Rare Disease
I was treated for an ear infection — then cancer — before I was finally diagnosed with a rare disease called IgG4-RD
I Won Three Olympic Gold Medals All While Keeping My Sjögren’s Disease a Secret from the Sports World
Now my goal is to tell as many people as I can to raise awareness about Sjögren’s disease
Having a Rare Disease Called PBC Taught Me to Speak Up
I spent years just waiting for a treatment — now, I’m advocating for one
Tener una enfermedad infrecuente llamada CBP me enseñó a decir lo que siento
Pasé años esperando que se desarrolle algún tratamiento. Ahora, abogo por uno