I'm Tired of ME/CFS Being Misunderstood
I’m using my voice to advocate for myself and the millions of people living with myalgic encephalomyelitis/chronic fatigue syndrome
I’m using my voice to advocate for myself and the millions of people living with myalgic encephalomyelitis/chronic fatigue syndrome
I thought I was healthy, but everyday stress was damaging my heart
I was 26 when I found the first spot. Then it came back.
When a GI finally took my symptoms seriously, I was diagnosed with a chronic esophagus disorder
Cuando una gastroenteróloga finalmente consideró mis síntomas seriamente, me diagnosticaron un trastorno esofágico crónico
A supportive medical team is crucial — as is a sense of humor
Un equipo médico solidario es crucial, al igual que un buen sentido del humor
I didn’t have the classic signs of a stroke, so I blamed my symptoms on being a new mom
I’m devoted to advocacy work and hope more people with COPD will reach out for support
Estoy comprometida con mi trabajo de concientización y espero que más personas con EPOC pidan asistencia
They didn’t take me seriously until the disease had all but destroyed me
After the initial shock and shame, I gained a new perspective
My days may look a bit different than I imagined, but my life is filled with joy and purpose
Mis días pueden ser un poco diferentes de lo que imaginé, pero mi vida está llena de alegría y propósito
As the first survivor patient research advocate in the U.S., I’ve dedicated my life to raising awareness and advancing treatment options for pancreatic cancer
After endometriosis surgery didn’t work, I was told to get pregnant or have a hysterectomy to help stop the pain
I was treated for an ear infection — then cancer — before I was finally diagnosed with a rare disease called IgG4-RD
Now my goal is to tell as many people as I can to raise awareness about Sjögren’s disease
I spent years just waiting for a treatment — now, I’m advocating for one
Pasé años esperando que se desarrolle algún tratamiento. Ahora, abogo por uno
Once I allowed myself to get help for my bulimia, I was able to start my recovery
My family wasn’t told the signs of hepatic encephalopathy until it was too late. Now, I’m raising awareness about the disease and helping other caregivers share their stories.
Like many people, I thought I was too young to have a heart attack — but it can happen to anyone
Having two cancers back-to-back tested my mental and physical strength, but now I lead a survivor group for the LGBTQIA+ community