Deborah D. Gordon has spent her career trying to level the playing field for healthcare consumers. She is co-founder of Umbra Health Advocacy, a marketplace for patient advocacy services, and co-director of the Alliance of Professional Health Advocates, the premiere membership organization for independent advocates. She is the author of "The Health Care Consumer's Manifesto: How to Get the Most for Your Money," based on consumer research she conducted as a senior fellow in the Harvard Kennedy School's Mossavar-Rahmani Center for Business and Government. Deb previously spent more than two decades in healthcare leadership roles, including chief marketing officer for a Massachusetts health plan and CEO of a health technology company. Deb is an Aspen Institute Health Innovators Fellow, an Eisenhower Fellow and a Boston Business Journal 40-under-40 honoree. Her contributions have appeared in JAMA Network Open, the Harvard Business Review blog, USA Today, RealClear Politics, The Hill and Managed Care Magazine. She earned a BA in bioethics from Brown University and an MBA with distinction from Harvard Business School.Full Bio
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With the recent death of Justice Ruth Bader Ginsburg, the fate of health insurance coverage for millions of Americans — already hanging in the balance — is under even greater threat.
On June 25, 2020, as the COVID-19 pandemic was spreading across the U.S., the Trump Administration filed a brief with the U.S. Supreme Court arguing to overturn the Affordable Care Act (ACA), also known as "Obamacare." That day, the U.S. reported approximately 40,000 new coronavirus cases and nearly 650 deaths.
Overturning the ACA would have dire consequences for everyone, but the risks for women are especially great.
The quest to kill Obamacare
After failing to overturn the ACA in Congress in 2017, its opponents moved the fight to the courts. Eighteen states, led by Texas, pursued a federal lawsuit to strike it down. The argument against the ACA hinges on the individual mandate, which requires all Americans to have health insurance or pay a tax penalty. When Congress set the penalty to $0 in the Tax Cuts and Jobs Act, the states argue, they rendered the individual mandate no longer a tax and, therefore, unconstitutional.
The Trump Administration chose not to defend the law, instead arguing that protections for people with preexisting conditions should be eliminated along with the individual mandate.
The Supreme Court is scheduled to hear arguments in the case during November 2020 and decide on the ACA's constitutionality by June 2021.
The value of the ACA
The ACA does not solve all U.S. health care woes, but it substantially expanded access to health insurance coverage and care, especially for women.
"The ACA's greatest contribution to women has been peace of mind," Rosemarie Day, author of "Marching Toward Coverage: How Women Can Lead the Fight for Universal Healthcare," wrote in an email exchange. "Regardless of your health status, no health insurer can deny you access to health insurance coverage in any state in this country. Since women do the majority of caregiving in the U.S., and make 80% of a family's health care decisions, this protection is essential to our ability to care for our families and loved ones."
Several features of the law have been vital to increasing overall insurance coverage.
Protection for people with preexisting conditions: The ACA made it illegal for insurance companies to deny people coverage for preexisting conditions, which was a huge benefit to the estimated 130 million Americans who have a preexisting condition, such as cancer or diabetes. Pregnancy, or even being a survivor of domestic violence, can also be considered preexisting conditions, and prior to the ACA, women with preexisting conditions were routinely denied insurance coverage.
In 2018, 56% of nonelderly adults with preexisting conditions were women, putting women at greater risk of becoming uninsured if the ACA is overturned.
Marketplace options for individual health insurance: The ACA created health insurance marketplaces where people can buy individual health insurance, sometimes with a subsidy if they qualify based on income. The number of women covered by individual insurance plans doubled between 2010 and 2016, increasing from 4.7 million to 9.5 million, and more than 11 million people — 6.2 million of which were women — enrolled in Marketplace plans in 2020.
Prohibition against rate discrimination based on gender: Until the passage of the ACA, insurers could legally charge women higher premiums than men, treating gender like a preexisting condition. A 2012 report by the National Women's Law Center showed that women were often charged 30% more than men for the same coverage, a practice that is no longer allowed under the ACA.
Medicaid expansion: The ACA gave states the option to expand their Medicaid programs to cover more low-income people. In all, 39 states expanded Medicaid; in these states, the uninsured rate is half that of states that did not expand, according to the Census Bureau. These coverage gains disproportionately benefit women, who are more often covered by Medicaid. Kaiser Family Foundation data show that in 2010, 11 million nonelderly adult women were enrolled in Medicaid; by 2018, that figure grew to nearly 17 million, or 58% of nonelderly adults on Medicaid.
"The expansion of Medicaid through the ACA provided greater access for women to get health insurance and health care," explained Martha Nolan, senior policy advisor at HealthyWomen. "It would do a massive disservice if it were to go away, to women in particular."
Essential health benefits: The ACA requires health insurers to cover 10 essential health benefits (EHBs), many of which are specifically for women. For example, maternity and prenatal care, birth control and preventive care, such as breast and cervical cancer screenings, are considered EHBs. Before the ACA, most women with individual health insurance lacked maternity coverage, and only one-third had coverage for birth control. Today, the ACA requires Marketplace plans to offer substantial women's health coverage.
Mental health parity: The ACA requires any health plan that covers medical care to offer equivalent coverage for mental health care, and mental health care is considered an EHB. These provisions disproportionately benefit women, who use more mental health services than men.
What’s at stake for women?
If the U.S. Supreme Court deems the ACA unconstitutional, women have a lot to lose.
"The ACA has been a lifeline," Nolan said. "If we eliminate the ACA, it's very callous to millions in this country."
What can you do?
"To protect the ACA, women need to make their voices heard again and again, as they did in the 2018 midterm elections, making it clear that health care is a priority and electing more women to higher office," Day said.
Using your voice can mean participating in surveys, such as the ones that HealthyWomen conducts, or actively campaigning for candidates who support protecting health care access. Lawmakers at every level can influence women's health care, no matter what happens with the ACA in the Supreme Court. Therefore, the most important thing you can do to protect women's health — and to honor Ruth Bader Ginsburg's legacy — is to vote.