I Spent 40 Years Looking For Answers to My Pain. I Didn’t Know I Had a Rare Genetic Disorder.
Through genetic testing, I learned I had primary hyperoxaluria, or PH, a rare condition that caused my kidneys and liver to fail
Through genetic testing, I learned I had primary hyperoxaluria, or PH, a rare condition that caused my kidneys and liver to fail
Mediante pruebas genéticas, me enteré que tenía hiperoxaluria primaria o HP, un trastorno infrecuente que me causó insuficiencia renal
Living with a rare disease has only made me work harder to do all the things people said I couldn’t do
Your guide to common sexual and reproductive health concerns when you have lupus
Tu guía para inquietudes comunes de la salud sexual y reproductiva si tienes lupus
Finding relief from chronic spontaneous urticaria — what treatments might work?
Encontrar alivio para la UCE: ¿qué tratamientos podrían ser efectivos?
Primary hyperoxaluria is a group of rare genetic disorders — and frequent kidney stones may be the first sign. Learn more about PH.
Cálculos renales podrían ser una señal de un trastorno infrecuente denominado hiperoxaluria primaria. Obtén información sobre este grupo de trastornos hereditarios.
There’s no cure for primary hyperoxaluria, but early treatment can help slow down the progression to kidney disease
No hay cura para la hiperoxaluria primaria, pero un tratamiento temprano puede ser útil para desacelerar el progreso a una enfermedad renal
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Early treatment of primary hyperoxaluria may reduce kidney stones and slow damage
Un tratamiento temprano de la hiperoxaluria primaria podría reducir los cálculos renales y frenar las lesiones
I teach math, and my son’s symptoms didn’t add up to anything I recognized. It was primary hyperoxaluria, an ultra-rare liver disease.
How to get the treatment you need covered by health insurance
Cómo hacer que el seguro médico cubra el tratamiento que necesitas
Scientists are studying lupus in many ways. Here’s what you need to know.
Los científicos estudian el lupus de muchas formas. Aquí encontrarás lo que debes saber.
Jean Wright, CEO of the COPD Foundation, and Demeshia Montgomery, COPD patient advocate, share a powerful conversation on battling COPD and the fight for awareness
Jessica Williams, M.D., MPH, and patient advocate Tracy Wilson uncover silent symptoms, Tracy’s life-changing diagnosis journey, and the path to thriving with lupus