![young girl with von Willebrand Disease looks at her doctor with a smile while sitting on the examination table.](https://www.healthywomen.org/media-library/young-girl-with-von-willebrand-disease-looks-at-her-doctor-with-a-smile-while-sitting-on-the-examination-table.jpg?id=27719351&width=1200&height=800&quality=85&coordinates=0%2C0%2C0%2C0)
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Director, Hemophilia Treatment Center and Hemostasis Program,
Associate Professor of Pediatrics
Division of Hematology/Oncology
Children's Hospital Of Michigan
Detroit, MI
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My daughter has von Willebrand disease. What can I do to keep her safe and help her lead a normal life?
If your daughter has von Willebrand disease (VWD) that's severe enough to cause bleeding, anyone who cares for her should be told about the condition. This may include her day-care provider, teacher, school nurse, babysitters, coaches or leaders of any activities in which she participates. This knowledge will prepare them to act quickly if your child has an injury.
Tell all of your daughter's health care professionals—doctors, specialists, dental professionals (including hygienists and orthodontists) and pharmacists—that she has VWD. Be sure to maintain regular follow-up with the pediatric hematologist who manages her care.
Since von Willebrand disease is hereditary, you may be familiar with many of the steps you can take to ensure a full and rewarding life. These same precautions will apply to your daughter:
This resource was developed with the support of CSL Behring.