How can I prevent scleroderma?

Q:

How can I prevent scleroderma?

A:

No one really knows enough about scleroderma to know whether there is a way to prevent the disease or delay its onset.

Occupational exposures to the silica dust (not silicone) found in mines and stonework settings have been linked to scleroderma. Solvents used in paint thinners and removers and certain chemotherapy drugs have also been implicated.

Although clear-cut guidance on prevention is lacking, there are measures you can take to prevent or lessen the symptoms if you have been diagnosed with scleroderma.

Dental care is essential. Some people with scleroderma develop excessive dryness of the mouth, which can lead to tooth decay. But oral hygiene may become difficult if your facial skin becomes tight. Visit your dentist often, and make sure he or she is aware of your condition. To combat dryness, try artificial saliva products. Excessively dry eyes also may cause discomfort. You can sometimes relieve dryness with lubricating drops and ointments.

Regular exercise or stretching can maintain joint flexibility and help keep your skin pliable. Other strategies include frequent massage of the skin and avoidance of detergent soaps, which dry the skin. Frequent use of bath oils and moisturizing lotions or ointments can help soften the skin, and a cold-water room humidifier can keep your skin moist.

Reducing stress is critical, and some experts suggest biofeedback training to reduce pain and promote relaxation. Joining a scleroderma support group can also help.

Naomi Rothfield, MD

Naomi F. Rothfield, M.D., was professor of medicine in the Division of Rheumatology at the University of Connecticut School of Medicine. She is an internationally renowned rheumatologist with special expertise in the management of systemic lupus erythematosus, scleroderma, and Raynaud disease. Her clinical research involves investigating new therapies for these and related conditions. In addition to her work at UConn Health, Dr. Rothfield is a consultant to several other area hospitals.

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