Chronic Care Issues
Treatment and Management of Primary Hyperoxaluria
Early treatment of primary hyperoxaluria may reduce kidney stones and slow damage
Tratamiento y control de la hiperoxaluria primaria
Un tratamiento temprano de la hiperoxaluria primaria podría reducir los cálculos renales y frenar las lesiones
My Son Won the Basketball Championship, then Passed 15 Kidney Stones
I teach math, and my son’s symptoms didn’t add up to anything I recognized. It was primary hyperoxaluria, an ultra-rare liver disease.
What Is the Mini Act and Why Do We Support It?
We urge policymakers to support the MINI Act to expand research, accelerate advancements in medical breakthroughs and improve access in healthcare.
Navigating Health Insurance for Nasal Polyps
How to get the treatment you need covered by health insurance
Usar el seguro médico para los pólipos nasales
Cómo hacer que el seguro médico cubra el tratamiento que necesitas
HealthyWomen Statement on HHS Replacement of All ACIP Members
We renew our call to maintain scientifically grounded vaccine recommendations
Understanding Lupus Research
Scientists are studying lupus in many ways. Here’s what you need to know.
Comprender las investigaciones de lupus
Los científicos estudian el lupus de muchas formas. Aquí encontrarás lo que debes saber.
The Great Girlfriends Podcast: Why COPD Is the 6th Leading Cause of Death in the U.S.
Jean Wright, CEO of the COPD Foundation, and Demeshia Montgomery, COPD patient advocate, share a powerful conversation on battling COPD and the fight for awareness
The Great Girlfriends Podcast: The Surprising Signs Your Body Might Be Battling Lupus
Jessica Williams, M.D., MPH, and patient advocate Tracy Wilson uncover silent symptoms, Tracy’s life-changing diagnosis journey, and the path to thriving with lupus
Navigating a Rare Disease
From diagnosis to treatment, people living with rare diseases face many obstacles. But recent advancements in technology and research could change that.
I'm Tired of ME/CFS Being Misunderstood
I’m using my voice to advocate for myself and the millions of people living with myalgic encephalomyelitis/chronic fatigue syndrome
HealthyWomen Statement on HHS Recommendations Regarding Covid-19 Vaccination During Pregnancy
We urge HHS to reverse its latest decision on Covid-19 vaccines during pregnancy
Type 2 Inflammation and Nasal Polyps
Knowing the connection between inflammation and nasal polyps may help you understand your symptoms
La inflamación de tipo 2 y los pólipos nasales
Saber la conexión entre la inflamación y los pólipos nasales podría ser útil para que comprendas tus síntomas
How Is Lupus Diagnosed?
What you need to know about the tests available for lupus and what the results mean for you
¿Cómo se diagnostica el lupus?
Lo que debes saber acerca de las pruebas disponibles para detectar lupus y lo que los resultados significan para ti
Common Types of Lupus
Lupus can affect the whole body, and understanding the different types may help you handle your symptoms
Tipos frecuentes de lupus
El lupus puede afectar todo el cuerpo y entender los varios tipos podría ser útil para que controles tus síntomas
Doctors Dismissed My Breathing Issues — But It Was Eosinophilic Esophagitis (EoE)
When a GI finally took my symptoms seriously, I was diagnosed with a chronic esophagus disorder
Doctores ignoraron mis dificultades para respirar, pero era esofagitis eosinofílica (EEo)
Cuando una gastroenteróloga finalmente consideró mis síntomas seriamente, me diagnosticaron un trastorno esofágico crónico
When My Son Was Diagnosed With EoE, Our Family’s World Was Turned Upside Down
A supportive medical team is crucial — as is a sense of humor