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Real Women, Real Stories

Jess Graham

I Didn’t Know Having a Baby Increases Your Risk for Stroke

I didn’t have the classic signs of a stroke, so I blamed my symptoms on being a new mom

stroke
Demeshia Montgomery

I Thought It Was Covid, but It Was COPD

I’m devoted to advocacy work and hope more people with COPD will reach out for support

copd
Demeshia Montgomery

Pensé que tenía covid, pero en realidad tenía EPOC

Estoy comprometida con mi trabajo de concientización y espero que más personas con EPOC pidan asistencia

copd
Shamekka Marty

I Lived with Undiagnosed Lupus for Years — Because Doctors Refused to Test Me for It

They didn’t take me seriously until the disease had all but destroyed me

lupus
amanda

I Taught People How Not to Get Herpes. Then I Got Herpes.

After the initial shock and shame, I gained a new perspective

sexually transmitted infections
Tracy at the Lupus Foundation of America’s Walk to End Lupus Now

I Still Live a Full and Active Life with Lupus

My days may look a bit different than I imagined, but my life is filled with joy and purpose

lupus
Tracy en la Walk to End Lupus Now [Caminata para eliminar el lupus ahora] de Lupus Foundation of America

Todavía disfruto una vida activa y plena con lupus

Mis días pueden ser un poco diferentes de lo que imaginé, pero mi vida está llena de alegría y propósito

lupus
Kay Kays

I Was Told No One Lives with Pancreatic Cancer, but 31 Years Later, I’m Still Here — Fighting for a Cure

As the first survivor patient research advocate in the U.S., I’ve dedicated my life to raising awareness and advancing treatment options for pancreatic cancer

cancer
Lindsey Peters

My Doctor Told Me to Go Get Pregnant to Treat My Endometriosis

After endometriosis surgery didn’t work, I was told to get pregnant or have a hysterectomy to help stop the pain

endometriosis
Sabrina Riddle

My Ear Infection Turned Out to Be a Rare Disease

I was treated for an ear infection — then cancer — before I was finally diagnosed with a rare disease called IgG4-RD

chronic conditions
Shannon Boxx

I Won Three Olympic Gold Medals All While Keeping My Sjögren’s Disease a Secret from the Sports World

Now my goal is to tell as many people as I can to raise awareness about Sjögren’s disease

sjögren's
Abby Hunt-Metzbower

Having a Rare Disease Called PBC Taught Me to Speak Up

I spent years just waiting for a treatment — now, I’m advocating for one

pbc