Burden of Vulvodynia

About one in five women may experience chronic vulvar pain at some point in their lives. Unfortunately, many women suffer for months—even years—before a correct diagnosis and appropriate treatment plan are determined. Some are told that the pain is all in their head since visible symptoms are rare. A recent study found that almost 60 percent of patients visit three or more health care providers when seeking a diagnosis, and of those, 40 percent remain undiagnosed even after this many consultations.

Vulvodynia can cause significant physical, sexual and psychological distress. Many women living with vulvodynia report difficulties exercising, being intimate and taking part in other daily activities. Even sitting for a long time can either trigger vulvar pain episodes or increase the severity of symptoms. Sex may seem unthinkable and you may start to avoid activities you cherish because of the pain.

Because genital disorders are not openly discussed, many women with vulvodynia feel isolated and may feel as though their pain will never improve. If you suspect that you have vulvodynia, talk with your health care professional. You may want to bring information about this condition with you to your next appointment. Remember, only you know the extent of your pain and its impact on your life, so asking for medical help is the right thing to do.

This content was produced with support from the Office of Research on Women's Health, National Institutes of Health, as part of the Vulvodynia Awareness Campaign.

Create Date: 10/24/07
Date Last Updated: 10/24/07