Prevention

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No one really knows enough about scleroderma to know whether there is a way to prevent the disease or delay its onset.

Occupational exposures to the silica dust (not silicone) found in mines and stonework settings have been linked to scleroderma. Solvents used in paint thinners and removers have also been implicated.

Many cases of male scleroderma appear linked to occupational exposures, with a genetic susceptibility component identified in one study of scleroderma among workers at a vinyl chloride factory in Great Britain.

Although clear-cut guidance on prevention is lacking, there are measures you can take to prevent or lessen the symptoms if you have been diagnosed with scleroderma.

Dental care is essential. Some scleroderma patients develop excessive dryness of the mouth, which can lead to tooth decay. But oral hygiene may become difficult if your facial skin becomes tight. Visit your dentist often, and make sure he or she is aware of your condition. Excessively dry eyes also may cause discomfort. You can sometimes relieve dryness with lubricating drops and ointments and artificial saliva products.

Regular exercise or stretching can maintain joint flexibility and help keep your skin pliable. Other strategies include frequent massage of the skin and avoidance of detergent soaps, which dry the skin. Frequent use of bath oils and moisturizing lotions or ointments can help soften the skin, and a cold-water room humidifier can keep your skin moist.

Reducing stress is critical, and some experts suggest biofeedback training. It could help reduce pain and promote relaxation. You and your health care professional can decide whether this approach will work for you. Joining a scleroderma support group can also help with the emotional aspects of the disease, and you will be able to exchange information with others who have the same problems.