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Healthy Aging

Tune In: It’s not Alzheimer’s. FTD, the Other Dementia

By Sheryl Kraft

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Join Kelley Connors this Thursday night as she hosts the Real Women on Health! on-line radio show. This week they will be discussing a condition called Frontotemporal Dementia, a topic near and dear to Kelley whose colleague, Jenny, has two sisters in their 40's who are both afflicted. 

FTD is a terminal neurological disease that affects approximately 250,000 people in the US.  The show will feature Dr. Bradley Boeve, Chair, Division of Behavioral Neurology at Mayo Clinic in Rochester, Minnesota. and Sharon S. Denny, Program Director, the Association for Frontotemporal Dementias, who will discuss the symptoms and impacts of the disease.  The show will also highlight a soon-to-be-released documentary film called “Planning for Hope” about FTD and include the real-life experiences from the film’s creators, Susan Grant and Cindy Dilks, as well as the perspective of Sheila Bourgeault, whose husband died in early 2009 from FTD.

“Frontotemporal Dementia is often lost in the shadow of Alzheimer’s disease”, says Kelley Connors, MPH, Real Women on Health! radio show host and Founder of KC Healthcare Communications.  Compared to the 5+ million adults living with Alzheimer’s disease, this is a rare disorder.  FTD usually occurs as an early-onset disease, presenting itself when a patient is in her 30s, 40s or 50s and can take a decade or more to be properly diagnosed due to lack of knowledge of the disease in the medical community, and resulting in increased healthcare costs and financial devastation for patients who are not properly diagnosed.  “This show aims to increase awareness to families and healthcare professionals of the signs and symptoms of FTD, and help families understand what resources are available to help them,” says Ms. Connors.

This 60-minute on-line radio show, themed “It’s not Alzheimer’s.  FTD, the Other Dementia” will be a conversational forum open to all, especially those who are interested in learning and spreading the word about FTD.  To listen to the on-line radio show, please register for the radio show first.  Once you’ve registered, you will receive an email instructing you with the next steps.  To listen to the show, once registered, please go to www.blogtalkradio.com/realwomenonhealth.  

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