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Thursday, Jul 15th 2010
Please Don't Tell Me I'm Losing My Mind. Unless You Can Do Something About It, That Is.
All in the name of progress, headlines yesterday appeared in major news outlets. "Guidelines Seek Early Detection of Alzheimer's."
Nice to read about medical progress, I thought excitedly. I'm one of the 75 million baby boomers heading toward the age where we start to head down a road to face a lot of things we fear. (Come to think of it, we're all heading down that road, but some of us are arriving earlier than others. I'd rather be fashionably late, myself. Or blame my lousy sense of direction for going in a completely different direction, altogether.)
New diagnostic guidelines could use technology (like brain scans, MRI scans and spinal taps) to detect Alzheimer’s years before there are any evident symptoms.
Technology is truly amazing, is it not? You could go for a test and in no time at all, be told that you have either preclinical disease, mild cognitive impairment due to Alzheimer's, or full-blown dementia. You could know ahead of time - as far as 10 years before it might even happen - if you were destined to join the other 5.3 million Americans who are now suffering from Alzheimer's. You could make "arrangements" for your future. And, even better, you wouldn't have to wait until you die and your body is autopsied to know definitively whether or not it was Alzheimer's that made you do the things you do; er, I mean…did.
And then what?
With no treatment for Alzheimer's, what good are these sophisticated new tests? Medical costs will skyrocket (oh, right, they're already in the outer stratosphere). Insurance companies would be privy to the results: would they deny coverage to those who have tested positive? Let's not even mention all the false positives that come with testing.
And given the unpredictable and fluctuating nature of the disease, how can you really, truly, make a "plan," anyway? Not to mention the fact that preclinical symptoms may not necessarily mean you are going to go on to develop the disease. So you sit, and wait, and worry, and wait some more?
Some might say that in order to develop drugs that will treat Alzheimer's, tests are necessary so that the drug companies can find those drugs that will be able to treat the disease in its earlier stages. I'm all for technology and ways to combat disease. But this seems like an awfully unfair, unsafe and maybe a bit unsavory way to do it.
This Matters> Let's focus, for now, on things we can do to prevent disease. New research shows that moderate to heavy exercise may cut the risk of developing Alzheimer's in half. And there's more about Vitamin D: low blood levels may increase the risk for cognitive decline. Other studies show that consuming a diet rich in Vitamin E (sunflower seeds, fortified cereals, almonds, wheat germ, avocado) may help reduce the risk for dementia, too.
You might also want to read: Brain-Healthy Spices You Should Be Using
The Important Vitamin You're Probably Lacking
Eating to Give Your Brain a Boost
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Comments
Jul 19, 2010 11:Jul 11 | Almost Slowfood said
Thanks for this! I was
Thanks for this! I was totally blown away by the early findings since A. If I'm going to die a horrible death and there's nothing I can do about it, why would I want to know about it in advance. That just sounds like an order for anxiety and depression and B. While I'm all for science and discovery, maybe this is a first step in understanding how Alzheimer's works and therefore will help develop some new treatments. So, I'm wishy-washy. Not so sure it's newsworthy and helpful for the general public.
Jul 17, 2010 13:Jul 1 | Susan said
Interesting ... Not sure if I
Interesting ... Not sure if I would want to know that I were going to develop Alzheimers. On the flip side of your concerns about insurance companies denying coverage are people who have one of those diseases that can't really be proven until after autopsy and insurance companies won't pay for treatment in the early stages if they're not 110% sure that's what it is. (That's what happened to my Dad when he became terminally ill, but he was able to collect some disability retroactively.)
Jul 16, 2010 14:Jul 2 | sarah henry said
I think I'd rather bury my
I think I'd rather bury my head in the sand than think about losing my mind (in truth, I think about that daily, but not in the way you're discussing here.)
I do, however, appreciate all the brain-boosting food facts, duly noted.
Jul 16, 2010 10:Jul 10 | Alisa Bowman said
I don't know if I would get
I don't know if I would get the test or not. I guess I would want to know. Maybe I would write stuff down so others could remember it for me. Maybe I would appreciate time and life more. I don't know.
Jul 16, 2010 09:Jul 9 | Kristen said
Sheryl, I always enjoy how
Sheryl, I always enjoy how you cut through the 'big medical announcements' to what it really means for the rest of us. My grandmother had Alzheimer's so I am trying to do what I can to stay healthy (not just to avoid disease but also because it makes me feel good). But like you, unless there is some substantial medical help out there, taking a test wouldn't bring much comfort.
Jul 16, 2010 07:Jul 7 | Nancy Monson said
Hi Sheryl, I went to a press
Hi Sheryl, I went to a press briefing recently where a researcher said Alzheimer's can be prevented and even reversed by drinking 6 cups of caffeinated coffee a day. I was blown away, since we've typically been told that's too much coffee (and I can't imagine how you could drink that much and still sleep). Anyway...something to watch.
Jul 15, 2010 16:Jul 4 | Claudine Jalajas said
Sometimes...
I'd rather be happy and stupid. I don't want to know the future unless I can do something about it. Heck, I don't want to know the future at all actually.
I never go to fortune tellers...
Jul 15, 2010 13:Jul 1 | Stephanie - Wasabimon said
Thanks for the nutritional
Thanks for the nutritional advice! This is so important - I hope that people open their eyes soon and see the longterm risks of poor diet.
Jul 15, 2010 13:Jul 1 | ruth pennebaker said
alzheimer's
Just the sound of that disease, which my father just died from, strikes terror into my heart. I'm on the fence as to whether I'd go in for a test. I just don't know and can't really bear to think about it.
Jul 15, 2010 13:Jul 1 | Jesaka said
Such a well-written post,
Such a well-written post, Sheryl. I especially appreciate your points regarding "and then what?" My maternal grandmother was thought to have Alzheimer’s and then her doctors weren't sure. This disease scares me and I really appreciate your point about doing what we can to prevent. Thank you!
Jul 15, 2010 12:Jul 12 | Jennifer Margulis said
I agree
Yes, yes, we need to focus on how to prevent the disease NOT on how to use technology to find new ways to rip off ailing people (can you tell I'm down on the health care system these days?).
My aunt had Alzheimer's and it was horrible, just horrible, to see her mind deteriorating. I don't wish that on anyone.
Jul 15, 2010 11:Jul 11 | Alexandra said
Thanks for these tips. I
Thanks for these tips. I read recently that folks who have Lyme Disease seem more prone to get Alzheimer's. At least the scientists are hard at work, trying to figure out what causes this horrible disease.
Jul 15, 2010 10:Jul 10 | marthaandme said
I am thrilled there is
I am thrilled there is finally some early detection of this terrible disease
