Fibromyalgia: First steps after a diagnosis

The days and weeks after you’re first diagnosed with fibromyalgia can be a whirlwind of emotions. You may feel anxious about what’s to come, angry that you have a chronic illness, sad that your lifestyle might have to change—or even happy to finally have a diagnosis! Here are some things you can do to feel more prepared and supported.

Coordinate your health care team
Chances are you’ll have multiple health care providers (HCPs)—possibly working at separate facilities—treating your fibromyalgia. These can include a primary care doctor, rheumatologist/neurologist, pain care specialist (i.e., anesthesiologist, physical medicine specialist), psychologist and physical therapist, some of whom you may see more often than others. Coordinating with your health care team may help ensure you get the best treatment.

Make a contact list of all your HCPs to distribute to each of them, and request that they coordinate with each other on your care and share information as needed. Take the time to connect using email if possible, phone if necessary—whatever it takes to keep your team informed and united.